Celiac Disease: You Are Not Alone!

I have been re-reading The G-Free Diet by Elisabeth Hasselbeck and it just amazes me at how similar her story is to mine. Reading this book is like reading my own story, and I have a really strong feeling that most people who read it feel the same way as I do.

Of course, most of what I am reading is everything I already know, but it does give me a sense of relief to know that I really am sane and that there are so many others out there suffering as I am. I choose to write sane as a very prominent choice of words because the doctors in the USA, specifically western medicine, really make us out to be lunatics! Diagnosing our own ailments?! The horror!

Health

I would like to fill you in on my current symptoms and what I’m dealing with. Not to sound like a complainer, but I want to write about this stuff because it might ring true for others who are experiencing simliar frustrations (just as Elisabeth Hasselbeck had which she wrote about in her book!):

  • My memory is usually shot and the pain in my gut is at an all time high.
  • My hormones and moods are wild, while my patience is completely non-existant.
  • I haven’t had any energy to exercise, nor am I able to stomach solid foods.
  • I have had to put a job on hold due to my condition and symptoms, which has left me with a considerable amount of time on my hands to research and “be my own advocate” as they say.
  • I have spent countless hours researching how to heal myself, while spending the only money I have been able to save on supplements (which cost a small fortune.)

*I have come up with a meal replacement shake, more or less, that I have been living off of. You may click here to see the full recipe. 

I have finally been able to get in to a doc just to at least get an endoscopy. The blood work is irrelevant to me at this point, being that I am already gluten-free… so there really is no point there (especially if I don’t have the proper physician diagnosing and evaluating my results.) They always come back to me stating perfect health… and insist that I have IBS and that I should take medication. I wish I had my last doctors visit on video, that’s how unbelievable it was! I know that this is everyone’s story, so I am here to say that I definitely feel your pain.

So why the heck am I wasting my time at the doctor’s office? I know how I feel and I know how I need to treat it, however, I am not able to physically see the condition of my gut from an internal prospective. I feel like I need a more thorough work-up or evaluation, one that I would not be able to find with the type of medical insurance I have. This is frustrating to me to no end, knowing what I have, not knowing if it’s worse or to what extent I have it, and to be constantly grasping at the surface only to sink deeper as the time goes by. Quicksand.

I wish there were better doctors, who are actually accessible. I wish they really cared. I wish they weren’t driven by money, but really sought out to help people. I have yet to come across one such doctor. Thanks to my research, I have been able to find resources that I feel will help to heal me in the long run.

*You can find a list of cookbooks and diet strategies I recommend for such purpose here. Most are still on my wish list… and I have yet to implement them into my lifestyle. Not because I lack the will, but because I simply cannot stomach much at this point. If you are reading this, and have been down this path, do please share your story. Have you begun healing while following any of the materials I have recommended? Do you have book and reference recommendations of your own that are not yet listed?

I strongly urge everyone who has celiac disease, gluten sensitivity, or if you are a loved one of someone who does, to read at least the first few chapters of The G Free Diet. This will give you a better understanding of what it is we go through. The simplicity of every explanation given in this book makes it an extremely easy and quick read. I apologize if my own writing is a bit funcky at the moment, but keep in mind that I haven’t been functioning on a normal level these days. At this point, I am lucky if I remember what I walk in the other room for!

Fitness

On a fitness note, I miss my exercise routine so much! This month I have been aiming a bit lower. I mostly just focus on small walks and stretching. Once I heal and am able to eat regularly, I will pick up my old routine again. All of those sweet goals of toning up, building lean muscle, and gaining endurance are still in place… just unfortunately set on pause for the moment. I have every optimistic thought in place, despite the more pessimistic tone of this post. I feel blessed and excited to be embarking on a new journey, and I am thrilled to be able to share it with you! :)

Remember that as you are being tried, no matter how bumpy the road gets it always gets smoother… and once it does, you will be that much stronger and wiser for overcoming it. I am happy and smiling each and everyday, and counting all of my many many blessing that I have been given. I would be doing the same thing regardless of my health right now. Not that I am overly driven in the spiritual sense, I’m just a really straightforward thinker (is that the word I’m looking for? Darn brain-fog!) There are so many other things going on besides myself… why make it worse!

I hope that my words can help to alleviate anyone’s frustrations with this process. It can be extremely difficult. If mine don’t do the trick, you will definitely find comfort in reading the expertise so thoughtfully written in The G Free Diet book. The passages from Elisabeth, Dr. Green and Dr. Weil are quite profound. It’s also a wonderful resource for beginners, with ingredients to avoid, etc.

I would like to thank everyone who has contacted me and voiced their own stories as well, via comments or by email. I have had such tremendous feedback, and I couldn’t be more grateful. Here’s to everyone who is on a happy path to health and healing, and I look forward to hearing more of your own personal experiences and related stories!

XOXOX F

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